Rare Disease Research

Date: 01 / 03 / 2010 - 01 / 03 / 2010

Location: Brussel

Description:

European Workshop: Bridging Patients and Researchers to Build the Future Agenda for Rare Disease Research in Europe
Centre de Presse International (IPC), Résidence Palace, Rue de la Loi 155, Brussels, Belgium

This Workshop will be an opportunity to draft a detailed picture of the rare disease research landscape in Europe today and to influence the shaping of the future agenda for rare disease research at national and EU level. European and national research authorities, researchers, policy-makers as well as representatives from patient organisations and industry will gather in order to identify the future priorities in rare disease research and define concrete steps to ensure a better collaboration of all interested parties. All attendees will have the opportunity to contribute to the ultimate goal of this meeting: to secure long-term resources for rare disease research at national and European level for the upcoming years.

Email address: anja.helm@eurordis.org